Olivia's labs have been steady for the past 4 months. Today she weight 29lb and grew almost 2 inch so measured at 32.3/4" long.... a slow progress but anything is better than none.
Beside labs they check for her kidney creatnine (toxin's discharge from kidney for functionality)and it had gone up quite a bit from 1.07 to 1.57 but the dr. assured me that as long as it doesn't reach 1.70 they have it under control as long as she gets more fluids to wash her toxin's out of her body... Extra fluid is definately managable since Olivia LOVES water so will take the rest of good news and go on to hopefully switching some of her eating regiment around... idealy would love to substitute some of her baby formula to reg food...
Hopefully more fun updates to come soon :) ...
Tuesday, September 20, 2011
Wednesday, September 14, 2011
Thursday, July 28, 2011
A super eventfull month...
I just have to start by saying...phewwwwwwwww.........
There have been so many events happening this month that has made it a month to remember FOREVER...
At first after 2-3 months in the market we sold our condo :)( thx to Mike R) to a very nice lady that I think is going to appreciate all the hard work that Peter has put into it.
Second, in the same week we found a new house that we made an offer and that's when the excitement begins... they denied it twice -they accepted it-we did inspection/appraisal and made a request for a fix up- they denied it again and put it back on the market and accepted another offer....so after 3 weeks of ups and downs on July 11-th we learned that is a no go deal....but waiiiit....as we're putting together our next house-hunting list our friend Mike(realtor) called 3 days later and said that it might not be done................................................ ………………………………………..if you think there is too many dots, imagine waiting for another week & half to find out FOR SURE that WE GOT THE HOUSE....so thankful for GOD and awesome realtor :))).
So as we empty and depart from our first home :( this Friday prepare to enter to the real homeowner world with a real house to where we are responsible for everything , that goes wrong that is…haha…
Peter’s parents are being generous at letting us stay with them until we close on Aug-15th so thanks mom & dad :).
In the midst of all of this caos Olivia caught 2 bad viruses and was sick for most of the month but thankfully she is feeling better now and is super exited to get a new bigger room.
Prayers are always appreciated for a smooth closing cuz it’s not over until we get those keys and sign those papers.
There have been so many events happening this month that has made it a month to remember FOREVER...
At first after 2-3 months in the market we sold our condo :)( thx to Mike R) to a very nice lady that I think is going to appreciate all the hard work that Peter has put into it.
Second, in the same week we found a new house that we made an offer and that's when the excitement begins... they denied it twice -they accepted it-we did inspection/appraisal and made a request for a fix up- they denied it again and put it back on the market and accepted another offer....so after 3 weeks of ups and downs on July 11-th we learned that is a no go deal....but waiiiit....as we're putting together our next house-hunting list our friend Mike(realtor) called 3 days later and said that it might not be done................................................ ………………………………………..if you think there is too many dots, imagine waiting for another week & half to find out FOR SURE that WE GOT THE HOUSE....so thankful for GOD and awesome realtor :))).
So as we empty and depart from our first home :( this Friday prepare to enter to the real homeowner world with a real house to where we are responsible for everything , that goes wrong that is…haha…
Peter’s parents are being generous at letting us stay with them until we close on Aug-15th so thanks mom & dad :).
In the midst of all of this caos Olivia caught 2 bad viruses and was sick for most of the month but thankfully she is feeling better now and is super exited to get a new bigger room.
Prayers are always appreciated for a smooth closing cuz it’s not over until we get those keys and sign those papers.
Thursday, June 2, 2011
Wednesday, June 1, 2011
Daddy's little helper...
Copying everything we do makes Livi feel like a big girl :)))
She loves Outdoors...
hmmmm ....what do i brake next....
She loves Outdoors...
hmmmm ....what do i brake next....
Monday, May 16, 2011
Expanding the vocabulary.
Saturday after work decided to do groccerie shopping so got home a couple of hours late. When i got home Livi was trying to show me her affection her way :
" mama where you go?...Lomen(women) you cared(scared) me you knucklehead...
??? i had no comeback beside covering my face and laughing :)
Later on as the day went by she was helping me put the grocceries away :
me- Olivia don't take that stuff out of the cupboard...Liv don't...Liiiivi
her- mom top(stop) saying dat(that), your pushing my limits... grin...waiting for my reaction...
me- what are you fifteen or three ?
her- i two mama...
no comment...
" mama where you go?...Lomen(women) you cared(scared) me you knucklehead...
??? i had no comeback beside covering my face and laughing :)
Later on as the day went by she was helping me put the grocceries away :
me- Olivia don't take that stuff out of the cupboard...Liv don't...Liiiivi
her- mom top(stop) saying dat(that), your pushing my limits... grin...waiting for my reaction...
me- what are you fifteen or three ?
her- i two mama...
no comment...
Friday, May 6, 2011
Briana's bday party.
Her cousins make sure she is the center of attention since she is the youngest one...well untill auntie Lydia's & uncle Matt's baby comes along :)
Always having fun and beign a jokester...
Trying to escape the camera ...Being around her cousins makes Livi feel like a big girl and she LOVES it.
Egg hunt !!!
When we got home Sunday after Easter dinner found out that our neighbor had created an egg hunt so Livi and her 2yr. old son can have their own egg hunt outside of our house...it waaassss priceless.
Tuesday, February 15, 2011
Harrison family pictures.
http://lisakaephotography.smugmug.com/Family-Session/HarrisonFamily/15791715_hUQZK#1184115522_hWEm9
Monday, January 31, 2011
Happy birthday our sweet little Livi.
Saturday 2:47 pm... two years ago a gift from God was given to us... a little miracle called Olivia Grace... a gift that changed our life FOREVER.
Happy birthday our sweet precious baby. Mommy and daddy loves you...unconditionaly
Happy birthday our sweet precious baby. Mommy and daddy loves you...unconditionaly
Wednesday, December 29, 2010
A Christmas to remember!!!
As we celebrated our LORD’s birthday this year we were also blessed to have all Peter’s family here in town for Christmas…what a joy…. Olivia got to meet for the first time her uncle Matt, auntie Lydia, Micah, Bea and her great-grandma Nika from my side (my first time meeting Bea also :) or Beebs as Livi calls her).
Now Livi’s favorite place to go is over at grandpa-grandma’s cuz she knows that’s where she gets to see all her cousins at once and be silly with them…
I can definitely say that this has been one of the best Christmas in a while ;))))))) …
Now Livi’s favorite place to go is over at grandpa-grandma’s cuz she knows that’s where she gets to see all her cousins at once and be silly with them…
I can definitely say that this has been one of the best Christmas in a while ;))))))) …
Thursday, December 2, 2010
Thankfullness...
What a great thanksgiving month this one has been...
Even though this is a bit late i still wanted to say how thankfull I am for ALL of you: - Our wonderfull biiiiggg family (even though some far away), our nurses and doctors that have helped Olivia to be where she is, my wonderfull friends, all the people at church that still shower us with continues prayers,love and support (thank you for all your encouraging cards) and above all I'm thankfull for God and HIS gift to me, a great husband and a precious miracle called Olivia Grace.
Yesterday we had Livi's nephrology appointment and it went great. Her labs were still stable and she had the biggest grow spur last month which shocked everybody...she weights 23.6 lb (5-15% tile) and length of 30.5 inches (almost on the chart)...whoohooooo....
Thank you again for all your prayers since we couldn't have done it without you ALL.
Even though this is a bit late i still wanted to say how thankfull I am for ALL of you: - Our wonderfull biiiiggg family (even though some far away), our nurses and doctors that have helped Olivia to be where she is, my wonderfull friends, all the people at church that still shower us with continues prayers,love and support (thank you for all your encouraging cards) and above all I'm thankfull for God and HIS gift to me, a great husband and a precious miracle called Olivia Grace.
Yesterday we had Livi's nephrology appointment and it went great. Her labs were still stable and she had the biggest grow spur last month which shocked everybody...she weights 23.6 lb (5-15% tile) and length of 30.5 inches (almost on the chart)...whoohooooo....
Thank you again for all your prayers since we couldn't have done it without you ALL.
Thursday, November 4, 2010
The itsy-bitsy spider... BOooooOOO
Since Livi started to talk her favorite song has been “The Itsy-Bitsy Spider” so we decided to dress her up as a spider… a super cute one ;)))
Going trick or treating with all of her cousins it was a bless. At first she was scared going by people’s door thinking that she was getting a pokey (her word for labs) but that didn’t last long. After the first 15 min and her cousins Roi, Christian & Antony bodyguard-escort to every door she was demanding she wanted candies and not the ones that they would offer to her…:” I wanted, no I want this one… Livi wants candY”…lol and sometimes she went for seconds… well all I can say, Thank you Livi for mommy’s snickers and Butterfinger breakfast the next day…hahaha
Going trick or treating with all of her cousins it was a bless. At first she was scared going by people’s door thinking that she was getting a pokey (her word for labs) but that didn’t last long. After the first 15 min and her cousins Roi, Christian & Antony bodyguard-escort to every door she was demanding she wanted candies and not the ones that they would offer to her…:” I wanted, no I want this one… Livi wants candY”…lol and sometimes she went for seconds… well all I can say, Thank you Livi for mommy’s snickers and Butterfinger breakfast the next day…hahaha
Another prayer answered
Yesterday at about 7:30 PM we got a call from Olivia's nephrology office. The results are back and after they reviewed them, Livi's bone matches her age...yayayyayaay...what a relief. I was so exited that tears of joy covered my face and couldn't stop them for a while :) :) :).
Ahhhhhh...such a relief knowing that she doesn't have to get those hormone shots. GOD IS AMAZING.
Ahhhhhh...such a relief knowing that she doesn't have to get those hormone shots. GOD IS AMAZING.
Wednesday, October 20, 2010
Great news...and some prayers needed
Great news after almost 10 months weight struggle for Olivia ( between 19-20 lb back and forth). She is finally back on the chart at 5% tile :) with a weight of 21 LB & 11oz. It has been very stressfull dealing every-week with therapyst,dietitian and doctors so hopefully she gets a break for a while with new feeding recipes since she gained a little. Livi is still in her baby-formula but they did take her off the protein and fiber substitute which appeared to effect her digestion so now that she has gone for a whole month without chocking spells she is more acceptant to try food by mouth…PRAISE THE LORD. I have made her a couple different soups (with her allowed veggies), and veggie pures so she seems to enjoy trying new tastes and textures everyday. So far her favorite munchie has been the “veggetable chips”…and Paco’s too bc we like to share a LOT ..haha
Like every doc. appt this one was no different since it seems like every good news comes with a “BUT” for us.
The nephrology Dr. brought to my attention that she is still not on the chart for her length (29.5 inch). If she wasn’t a kidney failure patient this wasn’t a big deal but they need to take action in Livi’s case. They did a “left hand bone age scan” today (x-ray) to measure where she stands age wise. This will decide if they start her on bone-grouth-hormone shots or not. It’s an everyday shot and it goes for a long time untill she reaches her stage. We really need everybody's prayer for this one… here are the pros and cons
PROS:
- It will help Olivia to be on a more healthy chart instead of getting her too heavy (raising her calories) which will affect her heart function.
-It will help her body grow so when she gets the transplant her body will be bigger to handle it.
CONS:
-it has to be given everyday (maybe by us) and she is traumatized by niddles/pain.
-The biggest side effects are the same as the symtoms of meningitis without having the bacteria in you ( constant bone pain & painfull headaches). The only way to relieve the pain is to actually “tap the spine” (is done by putting a niddle in your spine to extract the extra fluid).
It is such an overwhelming news and decision to take that my only hopes are to pray to GOD to continue to do miracles with our precious Livi. Peter and I are prepared for everything and we are aware that Olivia has a long-rockey road ahead of her but we’re praying for a painless one because that is very hard to see for both of us …
Like every doc. appt this one was no different since it seems like every good news comes with a “BUT” for us.
The nephrology Dr. brought to my attention that she is still not on the chart for her length (29.5 inch). If she wasn’t a kidney failure patient this wasn’t a big deal but they need to take action in Livi’s case. They did a “left hand bone age scan” today (x-ray) to measure where she stands age wise. This will decide if they start her on bone-grouth-hormone shots or not. It’s an everyday shot and it goes for a long time untill she reaches her stage. We really need everybody's prayer for this one… here are the pros and cons
PROS:
- It will help Olivia to be on a more healthy chart instead of getting her too heavy (raising her calories) which will affect her heart function.
-It will help her body grow so when she gets the transplant her body will be bigger to handle it.
CONS:
-it has to be given everyday (maybe by us) and she is traumatized by niddles/pain.
-The biggest side effects are the same as the symtoms of meningitis without having the bacteria in you ( constant bone pain & painfull headaches). The only way to relieve the pain is to actually “tap the spine” (is done by putting a niddle in your spine to extract the extra fluid).
It is such an overwhelming news and decision to take that my only hopes are to pray to GOD to continue to do miracles with our precious Livi. Peter and I are prepared for everything and we are aware that Olivia has a long-rockey road ahead of her but we’re praying for a painless one because that is very hard to see for both of us …
Thursday, September 16, 2010
Accountability at 19 months old ….
Yeaterday before her sedated ECCO Livi was getting her vidals done by the Doc. As always miss Olivia was interested in everything the doc. had in her hand.
Doc:- " Olivia if you wait 2 min. it will all be done... 2 min"
Livi:- " One. Ntwoo.Fthree. Foow. Fiiive...FIIIVEEE....FIIIIIIIIIve...
Doc:- " I'm sorry how old is she again???"
That's our daughter, keeping people liable for their words...LOL
Doc:- " Olivia if you wait 2 min. it will all be done... 2 min"
Livi:- " One. Ntwoo.Fthree. Foow. Fiiive...FIIIVEEE....FIIIIIIIIIve...
Doc:- " I'm sorry how old is she again???"
That's our daughter, keeping people liable for their words...LOL
Wednesday, September 1, 2010
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