Updates...

Olivia has been home since May 4-th thanks to the IV's added to her nightly regiment( we still do her labs and dr. appt every other day though). For this past 2 weeks her labs have been pretty stable ( not where they want her to be but better than they've been for the past month). In the meantime her nephrologist has had multiple meetings with the urology surgeons and as of yesterday they decided to put off her second surgery ( the nephrectomy). It was such a relief to hear those words come out of her docs mouth... Phew...they said that the acute injury was found on the tube part of the kidney which apparently regenerates by our body with time. Also the intestinal infection she got last month had a huge impact on dehydrating her new kidney so they want to give her new kidney time to heal right now instead of rushing into another major surgery that can make things worse. Olivia has been eating great too which is always amazing to see. It's such an overwhelming feeling to put a plate of food in front of your child without having to count all the phosphor and potassium in that plate and having to take it away from your child as they're enjoying it. With that said Olivia has been loving eating bananas and potatoes ( that she couldn't have before) and she's eating them daily ;)... for now haha.

The biopsy result.

The biopsy came back as AKI (Acute kidney injury which is rapidly progressive impairment of renal function that results in fluid and electrolyte derangement and retention of normally excreted substances in the blood.  In other words this shows that the native kidney is stealing/ flushing out all the fluids given to her so the next step has to be the nephrectomy ( removal of native kidneys). Our prayer request until the surgery is that the docs find a balance for Olivia's body. Right now kidney is at best with us giving her 3L of fluid a day but we're running into hypertension problems ( blood pressure has been in the high 150-160's and hard to manage). There is a lot of factors involved into the process of protecting the new kidney from further damage & so far has been really hard to do. Her Dr. Is consulting with urology surgeons also to make sure we cover all damaging factors so there is no surprises after the second surgery.  So far we're anticipating the surgery in the next two weeks but no date has been set. In the meantime Peter and I are monitoring Olivia at home(discharged on Monday) with feeding pomp plus IV's fluids until the surgery date. Thank you again everyone for praying and taking this journey with us. 

The biopsy procedure.

Slightly change of plans. Around 11:00 pm last night her dr. called us back with an action plan. As of 5:00 this morning Livi was admitted again and we're waiting for her biopsy procedure to be done by noon today. This procedure is very important for us to know if her body is rejection the new kidney or if the old one is causing the new kidney to fail. If the biopsy comes back negative ( we should get results by Monday), than they'll consider doing her nephrectomy ( surgically removing her old kidney) which is another major surgery but we rather have that done than having Peter and Olivia go through another transplant next week. Our fear of the unknown is draining us emotionally but we still have our faith and we know the power of prayers so please continue to pray for GOD's wisdom and quick healing of Olivia's little body. Thank you all for the continues love and support that you have shown to us during this very difficult time.

... need some love.

Today Olivia's labs came back not good. Earlier tonight I got a voicemail from her nephrologist that she wants to admit Olivia tomorrow again and if her numbers are the same, than she will do her biopsy tomorrow too. Seeing Olivia home has been a privilege since those days have been a very few these past couple of months and just the thought of more hospitalization days and procedures just brakes our heart to pieces... No matter how strong we try to be for each-other and her it is just too hard sometimes to hide it. As we got the news Peter and I were talking about her situation, the hurt, the faith... Sometimes is really hard to remember that GOD is in control especially when we want to be able to fix everything and we can't. At the end of our conversation, Peter reminded me again how my fears get bigger when I am not in control or not know what tomorrow will bring. - Dajana, he said,remember how GOD has not let us down yet ( looking at Livi playing in a corner with her dollies). HE has shown that HE loves us and is in control. That statement was really powerful at that moment. Tears filled my eyes so I used both of my hands to cover my face so Livi didn't see me. As I felt like chocking in my own tears, crying in silence and gasping for air in between my hands I hear a little voice behind me... O- mama.... Me,Clearing my throat ... -Yes love... Mama, I think you need some love today. I tried to wipe my tears really quick to see her little face but her little arms wrapped around my head so quickly and we just hugged each other so tight that we didn't want to let go. How beautiful to be able to get comfort from your 5-year old with just a little love...