Still able to enjoy the stay at home.

Olivia has been home with no hospitalization since our last discharge in May. Her body is still struggling at maintaining a low creatinine ( kidney toxins flush). For the past two weeks she has been in the high .77-.78 and ideally they want her at least at 0.60. Even tho she is running high they did finally take her IV off this Friday because her doctor doesn't want her body to get used to and rely on IV fluid rather than her regular liquid intake. She still needs to drink close to 3L a day which is a huge challenge on itself. On the positive note,Olivia has been eating great and growing like a weed ( or flowers as she says :) ). She is still going to the hospital for dr. appt and labs 3x a week but we're hoping that after her 3 month mark (June27-th) we can drop it to 2x a week which will feel somewhat more of a "normal" week. Thank you again to everyone that continues to pray for us. GOD bless.