Home sweet home.

The first night/day back home felt great. Olivia finally got a full night of sleep. Having an all new med list & routine was a bit challenging at times but I believe we were able to get everything done as directed by her doctor. Also her body is not adjusted to the change & to the new meds. side effects ( nausea,headache & loose stool) so eating & drinking has been hard for her which makes it even harder for us to push her to eat & drink all day :(. She has to drink over 1 Liter of liquids during the day & almost 1L overnight ( thank goodness for her feeding tube because it has been a life saver). I just put her to bed right now & I'm praying for another quiet & relaxing night :).