Restless night...

Last night was a little rough on Olivia. She developed pain & discomfort by her catheter. It was very intense to where she couldn't even rest or lay in one position. I tried everything, from patting her clean to rinsing multiple times until 4:00am. I got scared cuz we also found blood residue on her diaper but we couldn't determine where it was coming from ( front or back). She tried to sleep from 4:30 to 6:00 until they started the morning assessment and woke her up to stand on the scale which is so challenging right now cuz she has lost the strength on her legs ( they're talking about sending her to MaryFreeBed for PT) I'm hoping she can get some rest today to make up for the night. There's nothing worse than having to tell your child:" I'm sorry honey, there is nothing mama can do to help you..."