Monday updates. (10:15 pm)

At 7:30 this morning we headed to the hospital to get Olivia's labs for the first time since we brought her home on Friday. Thankfully the experience wasn't very traumatizing because she has an implanted port now above her heart and they can access it anytime for up to two years. Waiting for the lab results was nerve racking. I found myself pacing around the house and checking my phone every 2 minutes. I finally got a call back around 1:00 pm. The nurse said that most of the labs looked stable. The anti-rejection number was a little concerning to them because it had dropped from 12.0 to 5.0. (Right now they're trying to keep Olivia's numbers high in order to suppress her immune system so her body doesn't recognize the new kidney and tries to attack it ). So they want us to go up on the med. dose which will hopefully help with that. Also drawing labs every other day I feel like it can prevent an acute failure as long as it's med. related since they're adjusting everything according to the lab results. Another detail that made me nervous yesterday was the blood residue on her urine output The U.A did came back with high blood trace in it so they're sending it for more testing to another facility. As a precaution I also called the urology surgeon's office since they've put a stent in her kidney & bladder & Peter thinks it may play a role in the bleeding part. The office did confirm that if the child is very active that can move/rub & cause some bleeding. The surgery for the stent removal is scheduled on the 24-th so let's hope she won't get any infection until than. On a positive note, Olivia seems very happy during the day aside from a couple episodes of discomfort & nausea here and there. She has been able to get back on most of her daily routines & she's also getting more comfortable with the new ones ( including wearing a mask which was very challenging at first). Tomorrow is another day so I'm taking today as a great blessing & achievement to successfully do all her care at home. Soooo happy you're home baby girl. Mommy & daddy loves you...